It’s touching to read that nearly 2,000 people came out to help a stranger on the weekend.
Carolyn Tam has leukemia and her survival depends on finding a bone marrow donor. It’s not easy to find a match and after her plight was publicized, hundreds and hundreds of people came forward to agree to testing.
I went through this process many years ago for my friend Joe who has myloid leukemia. Joe’s story was well covered in the Hamilton area - you may have heard of it. Joe was adopted and although his birth father has four daughters, and there’s a one in four chance a sibling would be a perfect match, the entire family refused to get tested because Joe was, in their words, “not family.” These people professed to be “good people” but they denied Joe because he was born of a relationship before the man married. It boggled our minds.
So Joe hosted, and I attended, a lot of bone marrow donor information nights. We were happy to have signed up thousands of people to the international registry. It’s very quick, simple and could help anyone anywhere at any time. But none of them could help Joe.
Once you’re signed up you can still back out at any time right up until the patient’s own bone marrow is destroyed in preparation for the transfer. As the donor, you end up with brief flu-like symptoms.
I have been in the registry for more than a decade and I was called once to be told I was a partial match and they were going to conduct further testing if I still agreed that I would donate. I couldn’t say YES fast enough. Who wouldn’t want to save someone’s life? But I never heard from them again. That could mean that the final testing showed I wasn’t a good enough match, or that the patient didn’t make it.
And that’s one of the problems with conducting a search for a donor. Often times the patient or family don’t want to consider a donor until it’s the last resort and then, it may be too late. There’s a window of opportunity when it’s most likely to “take.” So if the patient doesn’t make it, it can appear that the donation wasn’t worth it. That is absolutely not the case, and once your information is in the Unrelated Blood Donor Registry, you’re available to help someone when they need it most.
Your part is brief. You give a bit of blood and answer a few questions, but testing in the lab takes some time. In Ms. Tam’s case, they’re looking for a donor of Chinese descent and the way the community responded is tremendous. Now, the anxious wait for test results.
Meanwhile, if you’re at all interested, google “bone marrow donation” and get the facts from a reputable source. I know people who have done it and the feeling of helping someone with something your body makes naturally, is a true high. On behalf of my friend Joe and Ms. Tam, I wish you’d look into it.